The Scleroderma Book: A Guide for Patients and Families by Maureen D. M.D. Mayes

By Maureen D. M.D. Mayes

The Scleroderma Book has lengthy been thought of the best resource of knowledge for sufferers discomfort with this affliction. Now comes the second one version of this hugely revered quantity, largely revised via Maureen Mayes, M.D., the best authority during this field.
Writing in particular for sufferers and their households, Dr. Mayes attracts on her vast event treating scleroderma to supply up to date, useful info that may support sufferers deal with their indicators and increase their caliber of existence. Dr. Mayes starts off with an simply obtainable description of the elemental evidence, distinguishing among the various manifestations of the ailment, starting from localized scleroderma (small patches of hardened dermis, commonest in little ones, which are inclined to resolve over the years) to systemic scleroderma, that may assault the lungs, the kidneys, and the blood vessels, and will be existence threatening. both very important, she bargains sympathetic and reassuring recommendation on issues that regularly predicament sufferers, similar to the easiest plan of action if you happen to wish youngsters, what to do if the ailment impacts your intercourse lifestyles, and what you are able to do to aid your physician deal with your disease extra successfully. The publication concludes with a very good humored, frank dialogue approximately how one can cope, day in and day trip, with an doubtful future--how to be a "person dwelling with" scleroderma, no longer a "victim struggling with" it. the recent version has up to date chapters at the genetics of scleroderma and on new remedies for problems of this disease.
Touching on almost each point of this illness, The Scleroderma Book offers a competent resource of knowledge and reassurance for sufferers of any age and irrespective of how serious their type of the disease.
Endorsed by way of the prime nationwide suggest team, The Scleroderma Foundation

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Example text

What she gets, however, is a lot of questions, blood tests, and a referral to a specialist who will pursue a diagnosis of a connective-tissue disease. 26 ✹ TERMS AND TYPES OF SCLERODERMA ............................................................................................... Diffuse Scleroderma The situation is quite different for someone with diffuse scleroderma. The onset is faster and people usually do feel ill. Raynaud’s phenomenon may not be the first symptom and, in fact, may never occur.

If the patient describes heart palpitations, then a 24-hour heart monitor may be used. A few weeks later the patient comes back to my office for the results of the tests. In many cases at this stage, the blood tests show that there is no evidence of lupus or overlap syndromes. The pulmonary function tests are either normal or show the results of smoking, not the pattern of lung involvement in scleroderma. The EKG and echocardiogram do not show any abnormalities, and the discussion with the patient revolves around management of scleroderma symptoms.

Secondary Raynaud’s Phenomenon Secondary Raynaud’s phenomenon is a different story. A typical scenario in scleroderma is that Raynaud’s phenomenon develops first and the person dismisses it, thinking it is just cold sensitivity. A year or two may go by without the person bringing it to the attention of a physician, especially if she or he feels otherwise healthy. Then, in a particularly cold period, a small fingertip sore may develop that just doesn’t seem to heal. Everyone knows how tender a paper cut on a fingertip can be, and that it takes days for the cut to heal and the tenderness to go away.

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